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January 2008

January 31, 2008

How to Cope with Pain "Blog Carnival"

How to Cope with Pain is now offering a monthly Pain-Blog Carnival during the last week of every month, to include each month's best posts.  January's carnival is now posted.  New bloggers are always welcome to contribute.
Articles include these topics, one of which I am excited to be the author of!
Change - The Words We Use, with 10 great ways to weave habits into our lives.

  • 6 Tools for Making Sensible Resolutions - smart choices might be better than the pressure of resolutions hanging over our heads. (Lisa's article)
  • Getting Down With What Gets in Your Way, 3 resources to get past whatever prevents you from meeting your goals.
  • The Measure of a Choice, looks at what happens when life doesn’t conform to our plans.  Are we capable of more than we thought?

Chat Event for Christians with Illness

upa I thought I would pass along this chat event that is taking place Feb. 1. Shep helped out in the Rest Ministries chatroom before we made the decision to close it. She's carried on a wonderful ministry on her own web site and I thought you'd like to connect with her.

Lisa

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Guest speaker, Harold Wilson, Tomorrow, Friday, February 1st, 2 pm EST at Shepherd of Hope Christian Chat and Chronic Illness Support Ministry.

My very own best friend and husband, Harold Wilson, will be tomorrow's guest..

Harold pastored for 18 years in the Free Methodist Church and was very strongly involved in the leadership and growth of several churches where he pastored.

He has had more experience with Chronic Illness than he will share about, but in the 9+ years we have been married, he has had plenty of practice at being the spouse (and a super supporter) for me. He raised his own four children mostly on his own (due to his first wife's severe mental illnesses) and then when we married, took on my three children so together we have raised 7.

The topic of Harold's session will be based on our BELIEFS ON HEALING as stated on that link on the website -- if you have not already read it, please take time to go and read it by clicking on the link above.

The topic will be "Being a Believer and Being Sick"... I think a few of us can relate!

Again this will be tomorrow, Friday, February 1st, at 2:00 pm EST.

You are welcome to share this page link with anyone who would enjoy hearing this talk!

www.shepherdofhope.org is open to any one who wishes to find support and Christian chat as well as prayers and worship time with other believers!

Looking forward to seeing you there!

God bless you with a great day of health and peace!

Love, Shep

January 23, 2008

If Insurance Says No, Fight Back!

Insurance saying, "NO!"?

If you have ever had your health insurance reject a treatment or to pay for something, you are among the millions of Americans who have dealt with this. If you've not, chances are you will at some point. This article in Parade Magazine had some grea tips I thought we could all benefit from. It may be a good article to save for when you receive that envelop in the mail someday that says, "Your requested treatment is denied."

Lisa

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Fight for Your Health Care | PARADE Magazine

Chances are, if you're among those Americans lucky enough to have health insurance, you will eventually have a claim rejected. And even if that decision appears arbitrary and unfair, you, like many of us, may just roll over and accept the verdict. Fighting the health-insurance bureaucracy on even small matters can be draining. And winning seems like such a long shot. But that really isn’t true. Surprisingly, people who fight back when their health-care provider says “no” often do win. The keys are knowing what will get results and being persistent. Read more of this article here

January 22, 2008

6 Tools for the Chronically Ill to Making Sensible Resolutions

6 Tools for the Chronically Ill to Making Sensible Resolutions
Lisa Copen

Delwomandrink_3 Did you recently make resolutions for the New Year?

- I'm really going to start an exercise program

- I'm going to lose those extra pounds

- No more bad habits!

- I won't be so sensitive

- I'll save more money


Most of us have at least reflected on a list of aspirations to accomplish but then March 23rd rolls around and we feel like a failure. Some of the goals we haven't done a single thing about but feel guilty.


The concept of setting resolutions is worthy and helpful for most people. When you are chronically ill, however, resolutions can be wearisome and even scary. Most of the time our bodies and our health, therefore our lives, are out of our control. The effects of chronic pain can be devastating I you dwell on it. Though losing five pounds a month seems reasonable, a prescription of medication can quickly add on the pounds, despite our best dieting efforts. Even small goals seem hopeless.

The rationale behind why we don't meet our goals is very reasonable.


--> I'm going to exercise more . . . And then I have surgery and my illness is exasperated. Even my doctor said to take it easy and not overdo right now.


--> I'm going to lose some weight . . . But a simple trip over a curb turns into a broken bone and then the doctor puts you on steroids. Soon you just want to maintain your weight and not gain even more.


--> I'm going to stop spending so much money . . . And then one emergency room visit sets you back two-thousand dollars


So what is the answer?


First of all, congratulate yourself if you ignored that calendar that flashed "January" beckoning you to set resolutions. January is be a time to recover from the holidays, the travel, or the family that may have visited. There is no universal rule that says all goals must begin in January. You're likely exhausted. December is often a time to finish up as many medical visits as possible before the new year's health insurance deductibles set in. The weather conditions can leave you home-bound for weeks. And if you've survived it all without getting the flu, a cold, or infection, you're one of few. Could there be a worse time to make major modifications in our life?


Secondly, make some changes without labeling anything a "resolution." When you go to grab snacks at the store, get items with high fiber, soy, sugar-free, organic, or even those that have immune boosts. Check with a dietician about what some healthy choices would be, taking your illness into consideration. Little changes will eventually add up, and you can have the pleasure of knowing you are working towards your objective.


Thirdly, make a list of things that are important to you. Rather than saying, "I'm going to make wiser choices about money." Write down what it is that you desire. Have you wanted to go see a local Broadway show for years, but have never been able to afford the $50 ticket? Is your car running on bolts and old tires? How much would you need to fix it or replace it? Surely you value the freedom having your own transportation gives you. By taking some time to write down what is important to you, and stick them on the bathroom mirror as a reminder, it will give you some motivation when you are making those small little choices each day.


Fourthly, team up with a friend who is also ill, to encourage one another in your practical goals. Stress and illness is not a good combination and any change in our life (good or bad) dramatically intensifies the strain. It's not helpful to have a healthy friend say, "Well, maybe if you cut back on your calories more it would help. I noticed you had two bowls of soup at lunch today." (Did she even notice that you completely resisted the temptation of the basket of bread? And it had free refills!) Symptoms of illness are very unpredictable and a friend who understands what you are experiencing is an amazing gift. You will be able to keep a better perspective on your goals when a true friend says, "It's so depressing when you lose the weight and then the medications make you blow back up overnight. But hang in there. It won't last forever."


Fifth, give yourself a break. Depression and chronic pain go together way too often. When you make a decision that is less than ideal, don't sweat it! Don't think of it as a failure, but rather just a less than perfect choice you made for that moment. You will have another sixty-something times in the next month to make the correct decision. Start out by just aiming for making the correct one more than half the time. Skipping that shopping spree or avoiding the drive-thru burger place is a step in the right direction.


Lastly, assign yourself a goal that is fun! We forget that not everything in our lives needs fixed. Sometimes we just need more joy. Mark your calendar for lunch with a friend every two weeks as a new habit. Surround yourself with people who are inspirational and who overcome the odds in their lives with enthusiasm. And don't forget to reward yourself too. If you clean out your closet, working towards an ambition to get more organized, go buy a new chic hat that isn't typically you.


If you have supportive friends and down-to-earth expectations, by the end of the year you will find that you are one of the few people who actually met some of those "resolutions." And everyone has some of their goals that are left for next year's calendar! So celebrate the fact that you have found some joy along the journey of reaching towards some new habits, despite living with illness.

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Get a free list of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen, just subscribe to HopeNotes invisible illness ezine at Rest Ministries. Lisa is the founder of Invisible IllnessWeek

January 20, 2008

2 Books About Illness in the Headlines

Okay, so I don't know much about his life, his haircut, or his beliefs, but when Steven Cojocaru spoke out a couple of years ago about why his face looked like a pumpkin from the prednisone it caught my attention. Someone in Hollywood actually admitting that (1) they didn't look so hot; (2) they had a (gasp!) illness (3) prednisone makes you gain weight uncontrollably! Hey, it caught my attention.

For all of you who are interested in this Red Carpet interviewer in Hollywood, he'll be on Dr. Phil on January 22: talking about his new book, GLAMOUR, INTERRUPTED, which describes his 2 kidney transplants (he rejected the first one I believe) and his struggles with medication, and more.

This isn't a recommendation. I haven't read the book. But I'm curious enough that I will be setting my DVR to record it and thought you may be interested too.

Other news of interest... Richard M. Cohen's new book, STRONG AT THE BROKEN PLACES: Voices of Illness, a Chorus of Hope.

If you didn't know, Richard is the husband of Meredith Vierra, co-host of the Today Show. Last week they featured people on the show who had a chronic illness and it was done really well... I even wrote Meredith a note on her blog. She tried to interview her husband like any other guest, but at the end of the interview tears came to her eyes.

Lisa

January 19, 2008

Got RA? New Prednisone Pill, Taken at Night, Eases Morning Joint Stiffness

I'm very excited to hear about any added benefits to prednisone because there aren't many. I will be asking my doctor about this and wanted to pass it along to you too!

Lisa

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New Twist on Prednisone for RA

Rheumatoid Arthritis Study: New Prednisone Pill, Taken at Night, Eases Morning Joint Stiffness
By Miranda Hitti
WebMD Medical News
Reviewed by Louise Chang, MD

Jan. 17, 2008 -- Rheumatoid arthritis researchers have created a new steroid pill that works overnight to ease morning joint stiffness.

Rheumatoid arthritis patients take the pill at night. The pill releases its prednisone four hours later, in time to curb morning joint stiffness.

The new prednisone pill works better than the traditional formulation at reducing morning joint stiffness, a new study shows.

The study included 288 adult rheumatoid arthritis patients in Germany and Poland. Half of them got the new prednisone pill. The other patients got traditional prednisone, which works immediately.

The patients kept daily diaries about their joint pain during the 12-week study. In those diaries, patients reported less morning joint stiffness within two weeks of starting to take the new prednisone pill.

Side effects were similar for patients taking either type of prednisone.

The researchers -- who included rheumatology professor Frank Buttgereit, MD, of Germany's Charite University Medicine Berlin -- report the results in tomorrow's edition of The Lancet.

The findings are "clearly relevant," but longer studies are needed to see if the new prednisone pill maintains its effectiveness beyond three months, says an editorial published with the study.

The new formulation may also prove useful in treating other conditions, say the editorialists, including Johannes Bijlsma, MD, PhD, of the rheumatology and clinical immunology department of Utrecht Medical Center in the Netherlands.

Buttgereit's study was funded by a German branch of the drug company Merck. Buttgereit and colleagues note financial ties to various drug companies including Merck. Editorialist Bijlsma has served as a consultant to Nitec, the Swiss company developing the new prednisone pill.

January 18, 2008

When Your Wife is Ill and Romance Ain't Happening

Looking for some fresh content? One of the ways I have helped spread the word about Rest Ministries is to write a number of articles, all of which are available to reprint for free. You can use these anywhere, such as your blog, newsletter (for church or support group, or whatever...), ezine, web site or more. Thank you for helping us by freely using the articles. Just add the footer at the end!

Blessings,

When Your Wife is Ill and Romance Ain't Happening

by Lisa Copen

When your wife has a chronic illness, though you may love her no matter what, it can be hard for her to get into a romantic mood. Physical pain from the actual illness to weight gain or loss, bloating, and less-than-fun symptoms of medication can all be a deterrent to some romantic moments.

It's important to know that you are not alone. Nearly 1 in 2 people live with a chronic illness in the U.S. which means that a lot of marriages are disrupted by this uninvited third party of illness, often including mental illness as well. Sadly, seventy-five percent of them end in divorce.

Is it possible for you to make a difference and let her know you want to romance her? Of course! With a few simple ideas, you can get the spark back into your marriage.

Buy her food that she can eat without guilt--even if you have to hunt it down. Did you know chocolate contains phenyl ethylamine, a chemical that produces the feeling of "being in love"? Look at your pharmacy for Russell Stover's sugar free chocolate. Starbuck's just introduced a heavenly new drink, a sugar-free Cinnamon Dolce'. Now that's romantic!

Hold her hand. Yes, I know. You're hoping for more than just holding hands. But if it takes a woman without an illness awhile to get in the mood, you can imagine the affection she needs in order to forget her physical pain. Rub her back carefully, use an endearing name you haven't used in five years, and don't pressure her for more. Snuggle, cuddle, snuggle as if you will never let her go.

Talk to her about how much you admire her and how she copes with the daily-ness of living with a chronic illness. Remind her that you're never going anywhere and you feel blessed to be married to someone who shows so much strength in character when her body is weak.

Buy her something she wouldn't buy herself like a $20 bottle of lotion, a CD she's mentioned or a rocking chair for the patio. What is something that she could enjoy when she isn't feeling well? Pamper her.

Schedule a day of rest for her. Get the kids out of the house, give her a new pair of pjs, and let her know she has he day to do whatever she wants.

Hide romantic notes in places she will find them. Stick a note in the fridge that says, "I know it's hard for you to go grocery shopping. Please know how much it means to me that you keep this box stocked just for me!"

Being romantic at home isn't hard. Purchase a fondue pot and tell her that you will bring home something to dip every Wednesday night so you two can sit and have a conversation over candlelight (and cheese, chocolate, marshmallow, etc.)

Are you having troubles starting up some romantic conversations? Buy a book about conversation starters or fill a jar with topics. Do a search online for "romantic conversation starters."

Take the time to create the atmosphere. The new flameless candles that operate on a battery are great for a romantic environment. Make up a play list on your ipod that will take her back to simpler days. Bring a big bouquet of roses into the bedroom when she isn't looking.

It's no surprise that women are complicated beings and rarely can you read her mind to know exactly what she needs and when she needs it. So be sure to just ask her outright. "What is on your mind most these days? How can I help you around the house more? What can I do to communicate just how much I love you?"

The good news is that perfection is not a requirement. Just by making the effort to increase the romance in the relationship will score you some big points. And she may not let you even have a chance to finish reading that book on romancing your wife, because if she sees you reading it, your willingness to read it may be all the romance she needs. One last piece of advice, doing the dishes or the laundry really can be the best way to your wife's heart.

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Get an instant download of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen when you subscribe to HopeNotes invisible illness ezine at Rest Ministries. Lisa is the coordinator of National Invisible Chronic Illness Awareness Week and founder of Rest Ministries, Inc.

January 17, 2008

Romantic Ideas for Chronically Ill Women to Romance Her Husband

Looking for some fresh content? One of the ways I have helped spread the word about Rest Ministries is to write a number of articles, all of which are available to reprint for free. You can use these anywhere, such as your blog, newsletter (for church or support group, or whatever...), ezine, web site or more. Thank you for helping us by freely using the articles. Just add the footer at the end!

Blessings,

Romantic Ideas for Chronically Ill Women to Romance Her Husband

by Lisa Copen

The words "hot and bothered" may spark images of twisted sheets and breathlessly reaching out to the one you love for most people. But if you have a chronic illness, "hot" likely refers to a thyroid condition, night sweats, or a heating pad on high. "Bothered" is everything else that happens in bed. Like achy joints that pop when you roll over, a cat that insists on sleeping on your leg, or a spouse who snores through thunder and lightening. Romance may be hard to find in your home!

Nearly 1 in 2 people live with a chronic illness in the U.S. which means that a lot of marriages are disrupted by this uninvited third party of illness, often including mental illness as well. Seventy-five percent of marriages end in divorce. But romantic ideas don't have to be used just on Valentine's Day.

So, how can you add back some of that spark? I've got some romantic ideas that will tell your hubby "I love you" even when you are in chronic pain.

Make an effort. Stop with the excuses. "I'm tired, I don't feel good. I am in so much pain." I've said them all. Guess what? You'll probably always be tired. Put on some music, sit back and relax. You're in pain? If you can push past some of the physical pain you'll soon be distracted and forget at least a good part of it.

Make romance a priority in your house! Rather than cleaning your house all day and mopping those floors, take a nap so that you have some quality time with your spouse that night. Make sure he feels valued and important and not just "one more thing to take care of."

Do whatever it takes to be enthusiastic for your romantic evening. If you go out for a nice dinner, don't tell him over the menu, "I actually feel pretty sick, so I don't know what to eat. I really am going out just as a favor for you." (That's won't turn your loved one on in the least!) Even if your romance is just dinner out, enjoy talking about some dreams you still have or what your hopes are for the future. Avoid talking about your illness or how it could change them all at the drop of a hat.

Even if you don't have the gift of writing poetry, do something that tells your spouse how much you appreciate him. Cover a page with sentences of things you appreciate and love using different colored markers. Make up a mini-photo albumn.

Think of all of the thing you notice your spouse does that is never done with complaint and write them down with a bit thank you at the bottom. Does he take out the garbage, get you medicine in the middle of the night, bathe your child without complaint, or even clean out the litter box? Write these out or type tehm in fun fonts as something for him to treasure.

Women, get over feeling self-conscious and buy some underwear that doesn't look like your grandmother's.

Ask your teen how to use that text message feature on your cell phone and send him a message that will make him look twice at who sent it to him! Go for it and be romantic, especially if it's the kind of thing you'd never usually do or say.

Design some simple home-made coupons for something he would enjoy but typically wouldn't do because he feel he needs to take care of you or just spend time with you. For example, "Good for 5 guilt-free hours with your friends watching baseball." Don't even make him feel badly for doing things you can't do like taking a hike or going for a roller coaster ride.

Perfect marriages will never exist, but a even a marriage that has an illness can be a huge blessing and not just a state of survival. Romance comes in many ways. I remember loving my husband more than ever the night I couldn't not move because of a rheumatoid arthritis flare. I "slept" sitting on the couch and he spent the night on the floor beside the couch to comfort me every time I screamed from the pain.

Love comes in many forms. One of the books I've bought all the couples in my life is "Love & Respect: The Love She Most Desires, the Respect He Desperately Needs" by Emerson Eggerichs. Men often feel loved when they are respected, women want to feel loved. Usually we are offering our spouse what we wan't, not what they need. Being aware of all of the little things we do each day that give one another love and respect, add up to romance when you least expect it.

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Get an instant download of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen when you subscribe to HopeNotes invisible illness ezine at Rest Ministries. Lisa is the coordinator of National Invisible Chronic Illness Awareness Week and founder of Rest Ministries, Inc.

January 16, 2008

7 Habits of Happy People Who Live with Illness

Looking for some fresh content? One of the ways I have helped spread the word about Rest Ministries is to write a number of articles, all of which are available to reprint for free. You can use these anywhere, such as your blog, newsletter (for church or support group, or whatever...), ezine, web site or more. Thank you for helping us by freely using the articles. Just add the footer at the end!

Blessings,

7 Habits of Happy People Who Live with Illness

by Lisa Copen

As I type this my 4-year-old son is sitting beside me. He has a cold and a slight fever, but all he has said today since he woke up six hour ago is "I'm better now. I'm all better." How much can our attitude change how we cope with a chronic illness and even make us happy?

Everyone copes with challenges in their lives in different ways. For those who are diagnosed with a chronic illness they may put on a happy face and literally decide they will use this as a dare to succeed, constantly trying to overcome any limitations it sets forth. Others will drive home from the doctor's office wondering how much longer they will be able to drive because of the pain. They'll flop down on the couch and rarely roam from it for years. What is it that makes some people thrive despite their chronic illness and others simply survive and use it as an excuse for everything that goes wrong?

People who live with chronic illness and still exude happiness and joy for life have some things in common. None of us are perfect, so even if we tend to cope well with our disease, there is likely a step listed below that we could take to improve our outlook on life.

Here are a few things I've discovered:

[1] They maintain hope. We've found through research that people who have hope actually recover from surgery faster than those who have less hope. Hope is fundamental and a basic step in finding contentment despite our situation. The 2006 theme of National Invisible Chronic Illness Awareness Week was "My illness is invisible but my hope shines through." This is an attitude we should all have.

[2] They persevere and keep going no matter what. Living with a chronic illness is painful! Emotionally, physically, and spiritually it has the ability to quickly drain our strength and spirit. Our health is one of the main things we depend on to help us conquer our dreams, even referring to the saying, "At least you have your health!" But people who live with chronic pain and still are happy have learned to persist in reaching for their dreams, or even re-examining their dreams in order to create new ones. At times, the news goals can be more exhausting than the original ones, but passion can create a lot of adrenaline.

[3] They are good advocates of their own health. Paul J. Donoghue and Mary E. Siegel, authors of "Sick and Tired of Feeling Sick and Tired," write "Getting this help in a consistently satisfying manner is as essential as it is challenging. You will need perseverance, courage and skill. You will need to understand your needs and be committed to getting them" (p. 160). People who take part in the  decision making process on the topic of their care and treatment, and who actively hunt for out doctors who will partner with them, are more happy than those who feel out of control. For example, if it's one's desire to have children it's important to have a medical team that will understand this desire and provide good treatment even if they don't agree with your decision, rather than reprimand you by giving you poor care.

[4] People with an illness who are happy tend to ask, "Why not me?" rather than "Why me?" They rarely play the victim card. To have this attitude takes effort if it doesn't come naturally. Many times people volunteer their time with organizations that may serve people who are also disadvantaged in some way. For example, they may volunteer for a group that serves others who live with illness, cancer, or who have left abusive homes, maybe even a pet shelter. They recognize that this world is not perfect and when things are going pretty well in their lives, it's as a blessing, not a right.

[5] They have a strong foundation of who they are, shielding them from taking things too personally. Having a strong faith can make this much easier because one understands that her value and worth as a person doesn't depend on what she can accomplish with her physical strength. She learns what she is responsible for (like an attitude) and not (like an infection that keeps returning). This can help avoid having unnecessary guilt for things out of her control.

[6] They communicate well. Being able to talk to others and explain your feelings, learning to listen effectively, and watching one's words carefully, can prevent a lot of problems. Hurt feelings, misunderstandings and arguments can impact your entire life and your body's abilities to cope with an illness. One must learn to control bitterness and focus on healthy relationships. Happy people know when to talk and how much to share about their personal lives. They learn how to speak with grace.

[7] They sincerely care about other people. Your illness may not have been the education you had hoped to get, but people who are happy see their experiences as a gift of knowledge. They can share their ups and downs, and struggles and successes with others who are going through challenging experiences and need a friend or mentor. To truly find happiness, we must search outside of ourselves and reach out to other people.

J.K. Rowling, author, once said, "It is our choices that show what we truly are, far more than our abilities." This quote is perhaps one of the most wonderful examples of a good attitude for those with chronic illness.

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Get an instant download of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen when you subscribe to HopeNotes invisible illness ezine at Rest Ministries. Lisa is the coordinator of National Invisible Chronic Illness Awareness Week and founder of Rest Ministries, Inc.

January 14, 2008

New "Doc" Show in 2008 Fall

A new show will be premiering this fall called "The Doctors" featuring 5 doctors that will talk about hot medical topics each day, share individual stories of people and answer (and argue about?) different issues and treatments. Should be interesting! It's produced by Dr. Phil McGraw and he and his wife, Robin, personally chose the doctors who will participate. Dr. Phil's son Jay is said to also be a part of the producers.

Here is what one newspaper has to say about it...

The show features five doctors taking on people’s health issues. Emergency-room doctor Travis Stork, who appeared on ABC’s The Bachelor, will be joined by Lisa Masterson, an obstetrician/gynecologist; Andrew Ordon, a plastic surgeon; Tara Fields, a licensed marriage and family therapist; and Jim Sears, a pediatrician.

All five doctors will appear periodically on CBS’ Dr. Phil this season in advance of the show’s debut next fall.

The Doctors will be produced by Stage 29 Productions and executive-produced by Jay McGraw, Dr. Phil McGraw’s son.

Lisa

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